Cf patients dating
Most recently, the Cystic Fibrosis Foundation, the national nonprofit that funds research and accredits hospital centers that treat CF patients, announced its recommendations for stricter infection control guidelines.At outdoor CF Foundation events, patients shouldn’t come closer than six feet from each other.But they didn’t know how easily the bugs could be spread. Infection control efforts ramped up, focused primarily on Burkholderia.But in the early 1990s, using new techniques of molecular testing, researchers found that the exact same strain of a particularly dangerous bacteria, Burkholderia cepacia, had been passed from child to child at CF summer camps. The bacteria is commonly found in soil and water, but the strains in the natural environment are usually different from the strains found in CF patients.“We were so vigilant in the face of everyone, back then, not being quite so vigilant.”Despite her vigilance, O’Hara contracted Burkholderia cepacia after a hospital stay at age 16.
Gone are the summer camps and dance parties of Lockwood’s youth.
“They acted like we were paranoid, and that’s a terrible feeling,” she said.